There are days when I don't feel great, for whatever reason...but I make a conscientious choice not to acknowledge it. I choose to say "I am fine", even when I feel less than fine... Even when I feel like I will break if I have to spend one more sleepless night wondering where this will all eventually take me. I say I am fine when I feel like an elephant is sitting on my head. I say I am fine, even when I have to struggle to make my left leg keep up with my right. I say I am fine, even as my face is tingling with numbness. I say I am fine, even when I get that weird choking sort of feeling in my throat. I say I am fine because I don't want to be THAT person who wallows. I don't want to be the person who no one wants to talk to because they will once again have to hear how lousy they feel.There are things. Things I feel, but never say.
I work very hard to stay in an emotionally happy place. I can't change this. It just is. I wish it weren't, but it is. I wish I could get excited about seeing my family who lives 600 miles away without wondering if they will be scrutinizing me, looking for tell-tell signs. I wish I could go to a family reunion without people saying "You look good" which really means "you look good for someone who was diagnosed with a lifelong disease". I wish I could spend an entire day playing with my art on the computer, bringing a faerie or an angel to life without physically paying dearly for sitting there. There are a million other things I wish, that I won't say out loud.
I have MS. I have no choice about it and the only choice I have in regards to its progression, is to put my faith in the drug company. I don't have the option of simply making lifestyle choices that could possibly have a huge impact on my disease. I can only hope and pray that it doesn't have its brutal way with me. I have no real control over it. I just have to hope the Avonex keeps it at bay.
I feel things...Things I NEVER say out loud.
(Even though diet isn't a major factor for MS, a good diet and exercise certainly won't hurt!)
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Two years ago, I bought a cheap 6 1/2 foot white Christmas tree from
I filled it with brightly colored glass ornaments, both new and vintage. It sports a frog in a pink hula skirt/tutu and a pink glass flamingo. It shines with glittering snowballs and shimmering icicles and snowflakes. With each ornament I would hang on the tree, a new smile would spread across my face.
As Christmas drew near, it soon became clear to me that my crazy tree still made me smile every single time I walked into my kitchen. It quickly became known as my "happy tree". My daughter told me that it looked like it belonged in a Dr. Seuss book. It has the same appeal as plastic pink flamingos on a lawn. Tacky? Why, yes...but just try not to smile at it!
This year has been a challenge for me. The discovery of the disease that has forever changed my life has not been an easy thing to face. As the holidays approached, I had to make some choices. The flurry of cooking and decorating has been tempered by other circumstances. Priorities, you know? Last week I had a three day dose of IV steroids followed by a week of near hell dealing with the harsh side effects. With each day that passes, I hope that this will be the day that I feel better. My head, my brain, has been a real challenge this past week, feeling squishy and heavy and swollen, as if it just could not fit inside my skull. Being vertical aggravates the already miserable feeling as well as causes numbness in my neck, face, lips and up to the bridge of my nose. This numbness and swollen feeling also affects my hearing..jpg)
